Dear Christine, sure. I know there are no doctors on the forum, I was wanting to know if anyone had a similar experience leading in to other symptoms, knowing that it would not necessarily apply to me. Just looking for direction. I am taking the advice of OzMojo and will phone the ENT I started with initially who felt I had amyloidosis. I have confidence in her even though she said I was beyond her ability to further diagnose, perhaps she could direct me to someone who can. I have had bad luck with doctors just telling me it is nothing because they did not know what was going on, instead of referring me out. This guy at VCU certainly can't be the last DR in that field. I will keep trying. I was just so hoping to get answers before it blew up again. Thanks. I'll be back if I find myself needing your group-I appreciate your response, and wish you all the best. Casey