 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Casey, please understand that this forum is made up of oral cancer patients and caregivers not physicians. We are not qualified to understand whats going on with your intermittent swelling. From what you explained, it does not sound like what you have is not how cancer presents itself. Swelling of the tongue can be life threatening so a trip to the ER or 911 call should be your first reaction.
Best wishes with finding out whats going on. Keep searching until you find the right doctor to help you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
