What you have been through treatment-wise seems completely out of the realm of what is normal for the rest of us that are posting here. It sounds like your diagnosis and treatment planning have been directed completely by a person or persons who have a distinct surgical inclination, as in most cases combination therapies yield the best long term results, certainly ones that do not require constant surgical interventions. It sounds like you would be best served at this time by a consultation with a multidisciplinary diagnostic and treatment team. What you are describing seems well out of the norm in the manner of treatment.

Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.