"OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | Wow, what good advice and info you have received. I've got the split lip thing. Drives me mad because I can't control my lips during drinking and some fluid inevitably ends up on my clothes. I've even gone to the extent of cutting tea towels in half to tuck into my neckline while eating and drinking. But I assumed it was because a nerve had been cut deeper in my mouth. Know nothing about nerves.
When I have a coffee in a cafe I wear a scarf and have a spare one in my bag to swap for the wet one. There's no way I can eat out because I can only handle soup and get that everywhere. Even with soup I have to take my dental plate out to eat. I'll have a better plate made for me in a few months and maybe there'll be some nerve regeneration but probably not I guess. It was cut because of scar tissue from my previous op muddying the waters.
At home I can eat many more things but make a glorious mess.
I'll be thinking of you and hoping we both make some small steps to recovery or at least major improvement:)
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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