Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Writing a diary or blog as Alpaca mentioned is a great idea for your brother or for you. I wish I had done it because it mades it easier to check back when you want to refer to some specific item of care, and there is a blog forum here where you can start one. The Rad Tx Center that my son went to was really nice and very friendly. They allowed my son and I to visit the room where he would be getting his Rad Tx and they allowed him to bring his own music on CD that they could play for him during the treatment. There was a "cookie lady" that came everyday with cookies for everyone and a "hug lady" that gave everyone hugs who needed a hug. Also a beautiful Collie Dog with her trainer who visited people in the waiting room. I was sitting there one day feeling a little sad and worried and the Collie was sitting a few feet away from me and only approached when I made eye contact with her and sat next to me while I petted her . . and it helped. It was in that waiting room that I met a nice young man about my son's age who approached me after my son left for his turn in the "Rad Room" and said "Go to the Oral Cancer Foundation dot org - they can help." And I did and they did! There are many smiles available in the Rad Room. I remember one day hearing about a lady who put rocks in her pockets so that when the nurse assistants weighed her she could cheat about her weight loss! At one of my son's treatments, he asked one of the nice assistants to take a picture which you can see here: http://webpages.charter.net/xila/paulrad.jpg
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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