Okay. Telling myself to take a deep breath . . . First of all I want to thank everyone for caring so much, it literally brings me tears.

I spoke with his surgeons nurse. They want Charles swallowing within the first seven days, while he is still in the hospital. Charles and I discussed this option and he wants to try to go the nose feeding tube route. He has a 'hang up' with PET and prides himself on making it through radiation without one. BUT he and I will need to discuss further before his pre-op appointment 9/10. During our pre-op apt with his surgeon this will be one of our main discussions and perhaps make a change, insert PET during surgery. My gut tells me he would do better inserted before. I just think better nutrition equals better recovery equals a happier Charles (and Sheryl too).


Wife/caregiver to Charles
ENT diagosed SCC Rt Tonsil Stage IV, MET 6 lymph nodes in neck 1/2001
Tonsillectomy, RND and six weeks RADS 2/2001
ENT diagnosis from CT scan, SCC in Rt tongue 2/13
25% of tongue removed 2/13 (clear margins)
SCC BOT with mets to 2 level 2 nodes and Lt. Delphian node 8/2014
Surgical biopsy shows cancer in larynx 9/2014
Laryngectomy, resection & rebuilt tongue w/ pectoral muscle, selective neck dissection 11/2014
Recurrences '16 HPV Neg No EGFR Mutations Detected