Thank you for your support. The white scab like thing and sore went away. Phew!
N74tg- as far as I what I've expierenced the first 6 months after radiation were the worst. I got mucositious bad and kind of lost all hope. I couldn't talk or eat properly. I lost a ton of weight, lost all but a few of my friends and was pretty isolated from most people. I was drugged to the high heavens and pretty much was in a haze.
I had the magic mouth wash I held in my mouth all day everyday unless I went to bed and if it hadn't been for me being so loopy from all the pain meds and very mildly and very accidentally slightly overdosing and vomiting I would have never know I didn't need the magic mouth wash or the pain meds anymore. That's when life got a bit better.
It was really an experiment to see what real foods I could eat. I just never knew what would be easy and go down like a dream or make my mouth feel like someone had poured gasoline in it and lit a match and threw it in.
The dry mouth was also pretty severe. I'd wake up and if I didn't remember I had to take a drink of water before trying to talk or wake up I'd end up peeling the opposite side of my tongue off my teeth and causing a minor wound.
This has all improved greatly and you figure out things that help yourself.
Flash forward to now and I'm eating pretty normally. Even foods I never thought I'd eat again, like taco bell. Some really spicy foods still bother me but for the most part I can eat what I want. And after trying that biotene stuff and realizing how little it worked and that it's not really meant for people with dead saliva glands I found if I chew gum through out the day it's as if both saliva glands are normal.
I still end up hurting the side of my tongue that didn't have the cancer regularly because unlike the side that had the cancer this side does touch me teeth and does most of the work. I wake up and still end up hurting it most days which adds to the panic like I had above.
I will say your mouth will never be like it was and you'll never not worry and at least for me there isn't a day I don't think about it.