I resisted getting a PEG tube but relented and had it placed a week before beginning radiation and chemotherapy. It turns out I had a hard time getting both enough nutrition and hydration so, ultimately, I was glad I had the sense to listen to what every medical professional had recommended. I was pretty much 100% reliant on the PEG tube for well over a month - and I still lost a ton of weight. I have had it almost five months now but haven't put anything through it (besides water to flush)for well over a month. My weight has been stable for all that time so I should be getting it out very soon.


2/2014 SCC T4aN2bM0 HPV+ Tonsil/BOT
3/3/2014 PEG and port
3/10/2014 Chemoradiation therapy begins 260 mg Cisplatin x3, 2.12 Gy rads x33
4/23/2014 Final Cisplatin infusion
4/25/2014 Final radiation treatment
7/17/2014 PET scan. Lymph nodes clear. Primary tumor reduced both size and SUV (borderline hypermetabolic) so it's inconclusive.
8/2/2014 PEG tube removed.
11/24/2014 Saw MO, RO, ENT, and Head & Neck Surg. over past 10 days - all agree no recurrence but enhanced surveillance will continue.