Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Were his cancer cells tested for HPV? Was he a tobacco user? Re the PEG, usually most don't need calorie assistance until late in the treatment or not until the radiation is completed as that 2 to 3 week period post Tx is usually the toughest part so usually we are only talking about 2 to 3 weeks where a feeding tube is REALLY needed. There is a great alternative to the PEG and that is the nasal tube and unlike the former it requires NO surgery, involves NO pain, has SIMPLE to EASY maintenance and a Do It Yourself removal. I know because I fought the PEG but finally relented to the nasal tube which was installed (takes a minute and an x ray) in my first week post Tx. I used it for 2 weeks and pulled it out at home myself. It really made a positive difference but I am sooooo glad I didn't get that PEG. Re nutrition, look into Boost VHC (stands for Very High Calories). Have to order it online or thru w pharmacy dept of say Walgreens or CVS. It is a small 8 oz can but packs a whopping 560 calories. When the swallowing gets tough all he has to do is drink 5 to 6 of those each day. I lived off of those during Tx and well into my first year of recovery where calories are just as important. Also he needs at least 48 ozz of water each day as well.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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