Hi all. I know it's been awhile so I wanted to check in. Although I haven't had the energy to post, reading these threads continues to help me immensely. I am about 5-6 weeks out from Rads now and am so much better overall. Am off narcotics, mucositis has healed, speech has normalized, and ropey mucus has converted to dry mouth (although I suspect it could be worse; I do have some saliva). I have to say, the ropey mucus was almost the death of me. Worst.side.effect.ever. But it's gone now so am thankful. I never got a PEG and lost about 15 pounds during the worst phase, but pushed myself very hard to drink Boost VHC to mitigate the weight loss and now am no longer losing. I am having a very hard time converting back to real food though. As many have said, I have some taste, but everything tastes odd and unsatisfying. Does this get better? I sure hope so. I also seem to still get nausea and stomach cramps when I eat and don't know if this is left over Rads effect or ? Did anyone else experience this? I'm so grateful to be better; it was a rough road! However this lingering need for shakes is getting to me as I thought I'd be eating by now. I think I just needed to vent but any thoughts are much appreciated smile


Laurie
42 yo
Pediatrician
No smoke, social drink, HPV neg
May 2013 - SCC Right lateral oral tongue - stage 1 (T1N0M0)
Partial hemiglossectomy and sentinel node bx NEG
NED 5/29/13
3/2014 - Cancer back (never gone) in one right sided cervical node
Modified neck dissection 3/2014, N1 with microscopic ECE,39 nodes neg
30 Rads and 2 cisplatin done June 13!
PET in 3-4 months but no clinical cancer and I'll take it!