 "OCF across the pond" Supporting Member (50+ posts)
Joined: Jun 2014 Posts: 56 | Please, please take heed of my story.
I had leukoplakia for 15 years, THEN it turned into a VERY aggressive cancer last year.
Nobody told me that smoking caused oral cancer, I "estimated" my chances of getting it as very low, and nobody told me that leukoplakia increases your risk of mouth cancer drastically!
So I carried on smoking for another 5 years.
I will always believe that, had I stopped smoking straight away, I may not have developed this dreadful, destructive illness.
I am very happy you don't have cancer now, but oh please, please never smoke again.
Giving up was very hard, but NOT as hard as cancer.
Sending you love x x x
Mar 99 white patch tongue
Dec 11 white patch changed shape. biopsy neg
Sep 13 white patch ulcerated. Biopsy
Nov 13 diag Tongue SCC T2N2BM0 poorly Differ.
Dec 13 Hemigloss. neck dissect.Trach.Caldwell Luc (suspect cysts inside face, neg), teeth out. forearm flap, abdo graft
Feb 14 PEG tube
Feb/Mar 14. 30 x radio 60gy Grade 3 Mucositis, burns, hair loss, very ill. Nerve damage ear neck shoulder
Jun 14 *now* PEG out. Have lost 98 lbs in 1 yr. Anorexia. Dysphagia, liquids only. Dysphasia. Fatigue.
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