Well I had my appointment today. I guess I'm quite surprised with the result. I was REALLY still thinking the whole thing was lichen planus, like originally anticipated. But it isn't. It's still unclear, I guess, what it "really" is.
So the "official" diagnosis (for the next two weeks at least) is
leukoplakia with epithelial dysplasia and candidiasis.
I'm not sure what my dysplasia is graded, but it sounded from the talk with the surgeon like it was moderate. It was kind of implied that candidiasis is often only seen in immunocompromised patients, which I am not, and I think that is sort of throwing them off in terms of where to go from here.
As a team (there are three doctors involved with my study), they decided to try two weeks of anti-fungal therapy, and if that doesn't completely heal all lesions, they will be re-biopsy what sounds like more areas of concern throughout my mouth.
Anyway. That's my update. I really didn't want to hear dysplasia :-(
Side note - I am not a current smoker. I was a naughty little girl that started smoking as a teen and smoked for many many years, quitting and starting up about 4-5 times. But no more.
Last edited by waitingimpatiently; 07-08-2014 08:28 PM.