OP "OCF across the pond" Supporting Member (50+ posts) Joined: Jun 2014 Posts: 56 | I'm asking this question anywhere there's a chance of getting a little advice, so please forgive me if you see it around the various oral cancer groups and pages. Is there *anything* I can do to prevent/slow/mitigate the formation of radiation fibrosis in my neck???
Over the last few weeks, my neck has been getting hard, the tissue is getting thicker; in the mornings it feels like concrete. I *do* have lymphedema (which is being treated), but this is *different* to the lymphedema. It's so horrible. Any advice very gratefully received.
Mar 99 white patch tongue Dec 11 white patch changed shape. biopsy neg Sep 13 white patch ulcerated. Biopsy Nov 13 diag Tongue SCC T2N2BM0 poorly Differ. Dec 13 Hemigloss. neck dissect.Trach.Caldwell Luc (suspect cysts inside face, neg), teeth out. forearm flap, abdo graft Feb 14 PEG tube Feb/Mar 14. 30 x radio 60gy Grade 3 Mucositis, burns, hair loss, very ill. Nerve damage ear neck shoulder Jun 14 *now* PEG out. Have lost 98 lbs in 1 yr. Anorexia. Dysphagia, liquids only. Dysphasia. Fatigue.
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