I'm asking this question anywhere there's a chance of getting a little advice, so please forgive me if you see it around the various oral cancer groups and pages. Is there *anything* I can do to prevent/slow/mitigate the formation of radiation fibrosis in my neck???

Over the last few weeks, my neck has been getting hard, the tissue is getting thicker; in the mornings it feels like concrete. I *do* have lymphedema (which is being treated), but this is *different* to the lymphedema. It's so horrible. Any advice very gratefully received.


Mar 99 white patch tongue
Dec 11 white patch changed shape. biopsy neg
Sep 13 white patch ulcerated. Biopsy
Nov 13 diag Tongue SCC T2N2BM0 poorly Differ.
Dec 13 Hemigloss. neck dissect.Trach.Caldwell Luc (suspect cysts inside face, neg), teeth out. forearm flap, abdo graft
Feb 14 PEG tube
Feb/Mar 14. 30 x radio 60gy Grade 3 Mucositis, burns, hair loss, very ill. Nerve damage ear neck shoulder
Jun 14 *now* PEG out. Have lost 98 lbs in 1 yr. Anorexia. Dysphagia, liquids only. Dysphasia. Fatigue.