Thanks for the words for wisdom David. I am glad to know the ENT is correct and we will continue to let the drs know about any lack of progress. He reads this forum support too, so he knows he is behind the curve. Yes, he is still on the peg, as it's the only way he gets he can get his calories. He hovers around 2000-3000 calories a day and does a great job keeping hydrated. As for pain meds, he is on fentanyl patch, which he changes every 3 days. He would like to be off that, but with the burning of the throat, he isn't, yet. The only other medications that he is on are mucinex, Prilosec, and zolfran. It's a lot less than the cocktails he was on during radiation.


Caregiver to husband, scc bot, stage IV, cisplatin x3, radiation 5x week for 7 weeks. PET due end of July. No surgery except for peg tube.