 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Yes we have a standard reply to a lot of peoples' questions and that is we all can react differently to the same Tx and what the ENT says is correct. We also tell pateints that the recovery from this horrific life saving Tx is painfully slow and can take every bit of 2 years with the first year being the most difficult. That said compared to most of us he is on the slow end of healing and if you weren't being seen at a CCC I would have said seek other opinions but I would still keep his docs aware of his progress or lack thereof as often as you want.
What pain meds is he on?
It's very important to the recovery process to give his body tons of fuel and hydration. We tell survivors at least 2500-3000 cals each and every day and at least 48 ozs of water each day.
Does he still have the PEG?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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