Hi Sharon, each patient and cancer is different, so is difficult to really say the best course of action, but being at a CCC is a must. They can do reirridation in select cases, I did 5x, and surgery is usually the first line of Tx for recurrences, like you're having with or without radiation or Chemoradiation.

There are many reasons for recurrences, due to field cancerization from exposure to carcinogens, being chemo or radio resistant due to a number of factors, the tumor was outside the surgical or radiated field, be secondary, synchronous or metachronous cancer, etc.

I don't see it mentioned, but was an endoscopy or pandendoscopy done of the upper aerodigedtive track for any other possible lesions, biopsies. It is sometimes done before surgery.

Most places follow NCCN Guidelines, but then it comes to a point that some are out of the medical books like myself, as my doctor said, and then it comes down to the experience and training of the doctor to be able to treat you or not. I changed doctors several times for various reasons, and will again due to my ENT and Radiation Oncologist leaving the hospital frown

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs