Hi Sharon - welcome to the family. Sorry you seem to be having a rough go of it. I agree with CherylD above, a 2nd opinion might be just the thing that helps you keep some sanity about all this. And keeping your sanity, especially in the face of continued difficulty is the name of the game here. You are definitely not the first person to have a tough time like this. We have several others whose road has been easily as rocky as yours. They have all survived to this point and you will too; it may just be a little rockier for you.

Get to know Paul and Bart and for that matter Christina; all have had recurrences and have stayed active on the forum. Bart is perhaps the best forum member for teaching you how to maintain a positive attitude in the face of difficulty. He did a wonderful job teaching me the right way to think about this stuff; it made my journey much easier.

I wish there were other steps I could tell you to take right now, but I'll have to defer to the masters at this stuff. No matter what, we are all here to help you get through this. We've all been there done that, still have the tee shirt.

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good