Thanks, people. I got some good advice about trismus from the SLT but made a mistake about the dental appointment. I had read July for June! Not going to beat myself up about it ... I get lots of letters from the hospital re appointments and it was a good trip to the dental clinic via car and two buses, one I can duplicate on the right date. As for the other symptoms, they can be dealt with when I see a surgeon on 15 July. To my disappointment I won't be seeing the surgeon (I noticed when I looked at my letters more carefully) who did my mouth but the "Head Fellow" a guy on the brink of being a fully fledged consultant. He's good, he was the one who operated on my radial free forearm flap this time and did a very satisfactory job on it but it's not the same as seeing the guy who actually cut the cancer out and looked at all the results to see what the margins were.
I see the Head Fellow on 15 July and will just have to be very clear with my questions and see if I can ring the main surgeon if I feel the questions aren't answered.

Can't believe how much busier Auckland Head and Neck Department is since I had my first surgery there over four years ago.

I think I'm slowly getting better with some easing in the trismus and improvement in taste. Oh how I love my thick shakes now. I can put all sorts of fresh fruit in them now. I'm going to have to wean myself off the formula:)


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.