Brian,

I do have dry mouth, despite constantly drinking water.

It has worsened today and aside from the ulcers, my tongue does seem to be turning a bit white. The pain is nearly or just as bad as when I was in treatment. I'm taking methadone, oxycodone, and motrin and it still makes me wince every time I swallow.

I will be calling the cancer center first thing in the morning.


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!