Hi Chris's caregiver,

You know when something is wrong and it doesn't matter how much the doctor says " it's fine don't worry"- when its wrong you know it. Obviously you went on to someone else and I wish your Mum all the very best with her treatment. It's tough- chemo is very doable because they have fine tuned the support drugs and it was really good. Radiation to the mouth is plainly awful- the side effects are very hard to manage and I recommend a feeding tube ( PEG) early in the piece if her mouth is being treated. It's been great when I couldn't eat but I'm eating normally and have been for a month and I'm sick if it but the oncologist won't remove it until I've had the 12 week PET scan following the end of treatment. Ultimately a minor inconvenience after all I've been through.
Look forward to hearing how Mum has coped with the treatment and I wish her the very best :)).
Penny


Penny
SCC of gum- 12/07. Rt lower mandiblectomy, full neck dissection. 13/03 swelling, pain=FNA 13/6= tumour recurrence, surgery 6xcisplatin 35 EBR. PEG.