Amazing! I went to my dentist with a swelling in my gum. She assumed an infection and so did I. 2 weeks later and no response bothered me. Went back to my dentist, and she prescribed another 2 weeks ABs.
Anyway I went to a periodontist who told be within minutes that what I had was a tumor!! A what??!!!! I said -I'm pretty sure it's a tumor - he said. It's a nightmare in the making for me!! I got referred to the top oromax surgeon in Canberra and he recommended a mandiblectomy and full next dissection after the PET scan said there was activity in my neck. It wasn't true, I had no cancer in my neck but it was too late by then. I woke up from the survey with my jaw dissected and my neck totally cut. I thought I would choke on my own saliva and the first nurse who spoke to me gave a lunch tray with sandwiches - I couldn't swallow, spit let alone eat and they gave me sandwiches. There was a nurse who wanted to wash the blood out of my hair and I was just focused on staying alive in the next 10 seconds and she sat me up in my ICU bed and poured warm water and shampoo over me while I'm scared I could die at any
Minute. I'm sitting on a bed with tubes down my throat, in every vein, catherised and this mad woman is washing my hair and I'm sitting in a large puddle of bloody water that she had filled my bed with. Is it just me or is this crazy. I was exhausted by this process after major surgery! It was ghastly. Anyway I recovered and my surgeon assured me I was okay. 9 months later
I told my surgeon that I had a lump in my jaw. He sent me for a test and that said i had fat necrosis but my surgeon was not confident about it and asked for a biopsy. It was a tumor- so a reccurrence!! Since then I've had chemo. Radiation ( horrible ) and every awful thing since, I'm sorry but it is hard and no one will tell you how awful it is. Feel free to ask me and I will tell you. It is doable but U need a strong mindset.
I am feeling strong and well and I know u can do it just like me, you have my respect and love as a fellow traveller, feel free to contact me and ask me whatever u want to know smile


Penny
SCC of gum- 12/07. Rt lower mandiblectomy, full neck dissection. 13/03 swelling, pain=FNA 13/6= tumour recurrence, surgery 6xcisplatin 35 EBR. PEG.