I know how you feel. the first time I ever met any other head and neck cancer patient was three years after my diagnosis, and that was at a SPOHNC meeting, and just had one on Thursday, Have you tried them? They have chapters throughout the country, and meet once a month. There are others, non head and head cancer, like Gilder's Club, which I never attended, but heard they are good. Check your local hospitals, treating hospital, to see if they have any. Maybe you can start your own support group with the help of your hospital or other organization. OCF have walks that maybe you can participate and or help organize or start a new one. See ChristineB for that.

http://www.spohnc.org/local_chapters.php

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs