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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Im sorry your father is facing such a hard battle.
As far as timing goes, I was diagnosed with Stage IV SCC in my mandible in early June. My doc gave me a calendar and said select a surgery date up until 12 weeks out. He said in 3 months there will not be much change happening. I was doubtful but put my faith in him and chose right after my son turned 20. Im explaining this so you can see your fathers situation isnt that far from the norm. Plus with his heart issues there is good reason for the extension.
A mandibulectomy (jaw removal) is a huge surgery. It will be at least 6 hours long with most Ive seen on here being 9-12 hours. Mine was 10 hours. Its going to be a very long day but the doctor should come out from time to time to give you updates to help ease your mind.
If your father can eat I suggest have him eat all his favorites now. It may be some time before he is able to eat like he normally would. He may need physical therapy with a speech pathologist to help get back to eating and speaking clearly.
If he will get a trach, ask for a possey muir valve trach so he is able to speak. This can be very important! If you dont ask, you wouldnt automatically receive this type.
There are several here including myself who have been thru this. Stick with us and we will help your father (and you) get thru this. Best of luck with everything!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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