 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so sorry you are having a difficult time! This is completely normal. Many patients and caregivers go thru exactly what you described. It has been compared to PTSD, or maybe it is a form of it. Others have described it as just waiting for the other shoe to drop. After everything your family has been thru and you have witnesses first hand with someone you love its perfectly normal to have doubts of a good future. Fearing a recurrence is all of our worst fear. Quite a few caregivers will seek out a therapist to talk to, many take anxiety meds. I wish I had some magic words to help make you feel better. I guess its like everything else, it takes time to heel.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
