Hello: I have oral cancer and I hate it. I was feeling so positive post-treatment however, everything seems to be spiraling down. I finished treatment end of Sept/13 and my Oct appointment went well. However, CT Scan in Dec/13 showed a new spot by voice box and was advised at Jan/14 appointment. Life has become a waiting game between appointments/scans/biopsies. I have had three different biopsies which come back negative, however, the doctors have "clinical concerns". PET Scan came back "inconclusive". They cannot tell me if I have cancer or if I don't. I didn't go through treatment not to know.

I will have another CT Scan in a couple of weeks and have been referred to an out of province cancer center. I have difficulty swallowing and have been advised that feeding tube maybe life long. I try to live in the moment and not worry about tomorrow or a year down the road, it's hard. I thought I was beginning a new chapter in my life - retirement - maybe working part-time, travel, enjoying life, and it seems to have been ripped out of my hands.

I'm hoping that this site will provide me with some answers that the team is not providing and to receive the emotional support that only those that have had this terrible diagnosis can provide. I have come to fully realize the treatment for Oral Cancer just keeps on giving.