Hi SLL, it sounds as though your hospital really has your confidence, that's so important. I am just a huge believer in 2nd opinions and had the thought it might be helpful to you, too. I think MD Anderson might be the only hospital I wouldn't back up with another.
At every crucial juncture, I get opinions from incredible teams of doctors at two major teaching hospitals. Each tumor board is made up of multiple docs. I've done it 3 times now and there's been a big variance in recommendation every single time.
I hope you connect with some of the folks who share your specific diagnosis, it helps to not feel alone. In the meantime we are here for you!
Lynn
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
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