Hi Chock - welcome to the family.

My tumor was also initially T2N1M0. That determination was made from the first CT they did. Then, when radiation started they did another CT and the node had gone back to normal size. So, it was determined that the node enlargement was not caused by cancer and I was reclassified T2N0, and for that reason radiation only was my treatment protocol (no chemo).

This family is full of members who have had oral cancer or were caregiver to someone who did or does. Every one of us is different, that means the treatment each one of us receive may be different, in some instances vastly different from what others received on the forum. There truly is no one shoe fits all approach to oral cancer.

The bottom line is do you trust the doctors you are working with. Are they knowledgable about specifically oral cancer. The best place for that knowledge is a CCC, a comprehensive cancer center. Those guys really do know their business because cancer is all they do. A list of the CCC's can be found on the OCF website pages. Even if all you do is get a second opinion from one of the CCC's that may help you sleep better.

If after you think about this you decide that you trust your doctors then you have to follow the line of treatment they recommend. If not, then you also know what you have to do.

Either way, we are here for you and await an update on what you decide. We will help you get through this, every step of the way. Others helped us in our time of need, now we pay it forward.


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good