Hi Dianne - just re-read your note, it sounds like your greatest worry is the day or two right after surgery. You will most likely be on so much pain med that it won't be agony, I'd categorize it as severe discomfort. I had at least as much of a problem getting the nurses and docs to leave me alone for sleep as with anything else, they kept coming in every 30 minutes to poke the flap to make sure it was getting blood, and I couldn't get any rest. You'll be bored, very uncomfortable, but not in agony, at least if my experience is any indication. It won't be easy, but the nurses will get you through it.


Joe
SCC BOT T3N0 Aged 36 (1999)
Unknown HPV status (before they knew)
SWOG Protocol - 2 rounds chemo, 6 weeks radiation
Recurrence Age 50 (2013) - same site
SCCa BOT T2N0M0
HPV negative
60% Glossectomy/Free Flap from Latissimus Dorsi Recon,
Neck Dissection + 6wks Rad Tx
Non-tobacco user