HI there... it can be an aggressive cancer. Ideally you want to move quickly. There are several people here who have had it so as Christine says... you are not alone. Just remember there really should be no ambivalence with regards to treatment as time is of the essence. You should be treated at a top CCC - since they see and treat this cancer all the time and know what works. Try not to freak out... though I know the word cancer is terrifying. You have to be diligent with this cancer, and be aggressive back. What you are facing is not fun... no one here will lie to you. But you will get through it. Educate yourself on the standard treatment, you are your best advocate. hugs, welcome and sorry you have to be here, but this is a great resource...