Sorry you are here, and even more sorry you have to deal with this pain, all without a clear diagnosis. Mentally, it's easier to deal with anything having a definite name, history, etc.

One thing that might help your pain is to get your doctor to prescribe (if required) some Oral Lidocaine Topical Solution. It's a thick liquid you gargle, swish around and spit out. The ...caine part of it numbs things nicely. Good luck.

Ja 2013 tongue, red sore spot, r/r edge + white strip underneath, no pain
Al Bx on spot, strip, and vocal cords, lab rep benign
Oc 24 Surgeon follow-up, larger Bx req'd
Oc 25 Bx bits to Vanc. Cancer lab
No 14 MD said more ca investig'n req'd
No 19 Prince George CC, MRI & CT
No 20 PGCC Oncol says cancer
De 2 Vancouver Cancer Centre, PET/CT
De 31 VGH partial glossX + ex spot on vocal cords