Hi Everyone,
So unfortunately the biopsy of the two new spots (found on CT) proved to be positive. Next step: get a PET and make sure they are the only 2 spots--and no spread elsewhere. If no spread, then stereotactic rads. If not (ie: further spread) then it's more of a systemic treatment approach. PET will be done in 9 days since my husband is in the throes of a nasty chest cold.

CAN I SCREAM ???? I am SO FRUSTRATED that they insisted on a CT scan and not a PET in the first place. When we asked "why CT instead of PET?" we were told that PET can show false positives in the lung area--thus creating unnecessary worry. (ARGGGHHHHHHH!!!! OK !!??) I guess my frustration is here we are waiting to do a PET anyway.

Can anyone else weigh in on their experience with PET versus CT scan? I have been PM'ing with at least two others in a similar lung lymph met situation (but at different CCC's) who are having PET scans to check lungs. I know I know I know everyone is different, but I am beginning to wonder if this is more of an institutional approach where we are.

Just feeling ready to scream. Maybe beginning to lose my cool--and my humor-- with all this. Gotta hold it all together for the kids (who are blissfully unaware of these complications) and the hubby-- who is growing quieter and quieter each day.