The best thing we did for our children was involve them in the ins and outs of tx. We didn't want them to be alarmed. They were 11,13 and 15 at the time. Old enough to understand the severity of things and know that we would need their help sometimes, but also needed them to remain focused on their studies and try not to worry too much. Please let your son speak to your docs or nurses if he has questions. I was amazed with the questions the kids asked. Things I would not have thought they were even thinking about.
Stay in touch with us and we will help you get through this. It will truly be a tough battle. You will have to have help...don't wait to have it lined up.
Only other comment I have is as far as having surgery and seeing if that alone works, you get one chance with this; Hit it hard with all they will give you the first time.
Keep in touch!!
Kathy