Hi Everyone! I thought I should share some EXCELLENT news! Tim's taste buds are recovering every day! Right before Christmas he decided to sample all of the wonderful foods at a party and FINALLY he discovered remarkable improvement! For the past week he has been trying many foods and actually enjoying them! His weight loss stabilized at about 3 weeks post treatment for a total of only 15 lbs. With no feeding tube!
He is now having just some dry mouth, and hoarseness. The back of his neck is totally hairless (he has let the rest grow to cover the 4 inches of hair loss)and it is only apparent when the wind blows. LOL!! He will have a PET/CT in the next few weeks, and we are hopeful that it will be good news!

Caregiver to Tim(Best friend and love of my life)55 years young!!
Small BOT SCC (HPV+) with mets to 2 large and 1 "cluster" of right neck lymph nodes. DX 7/2013
Treatment started 8/2013. Completed 10/9/2013 IMRT 70GY over 31 days X2. Cisplatin X3 No PEG.
PET Scan 1/15/2014 NO Evidence of Disease
5/18/2015 NED with follow up visits to oncologist and Radiation oncologist every 3 months.
Cautiously Optimistic and starting on the journey to recovery!