Roger, I'm very saddened and shocked to read your post. I can't even imagine what you must be feeling right now, but be assured that every one of us here on the forum is with you in your battle.

There are total glossectomy survivors here and I'm sure they'll be along to offer you expert advice and support.

I'm going to leave it to them, but I'm here for you to lean on at any time.

Sending all positive vibes your way.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18