I'm surprised that the doctors went with the NG tube instead of a PEG. Given the size of the tumor I'm sure they had to have some kind of ideas of following up with radiation treatments. I had a PEG in from the surgery until about 2 weeks after radiation treatments ended. It was an annoyance having it there since I wasn't using it at all. Then I got to that last week of treatment and was very glad to have it. Anything other than water was unbearable on the mouth sores. I'm sure the NG tube is just as annoying, and with radiation it may become downright painful. I would definitely talk to docs about getting a PEG though. Even if it's just to throw down some extra calories while giving the tongue a break.
Dan
Stage 4 SCC on right underside of tongue
DX on 7/19/13 at age 29, no tobacco, light drinking
Partial Glossectomy/reconstruction/neck disection 8/20/13 Temp Trach, PEG tube
4/59 lymph nodes cancerous, 1 with extracapsular extension
Chemo - Cisplatin - 3 treatments started on 10/01/13 Radiation - 33 treatments started on 10/02/13
|