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| Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | I think that your sister will definitely need a PEG tube. Learning to swallow after a total Glossectomy requires the help of a Speech/swallow therapist plus plenty of practice. Going through radiation is going to make this very difficult for her. She should still be able to swallow but I don't think she will be able to take in enough calories. Remember that many people who do still have a tongue need a PEG to maintain their caloric intake. My Kris still has his PEG 21 months post his total Glossectomy even though he has not used it for 18 months. I would be challenging the Dr on this. Yes, the Naso Gastric tube should come out, but I think only when they have placed a PEG. I don't think your sister will get through this without one. Thank goodness she has you in her corner. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
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