| |
| | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | I think that your sister will definitely need a PEG tube. Learning to swallow after a total Glossectomy requires the help of a Speech/swallow therapist plus plenty of practice. Going through radiation is going to make this very difficult for her. She should still be able to swallow but I don't think she will be able to take in enough calories. Remember that many people who do still have a tongue need a PEG to maintain their caloric intake. My Kris still has his PEG 21 months post his total Glossectomy even though he has not used it for 18 months. I would be challenging the Dr on this. Yes, the Naso Gastric tube should come out, but I think only when they have placed a PEG. I don't think your sister will get through this without one. Thank goodness she has you in her corner. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
| | |
| Forums23 Topics18,286 Posts197,239 Members13,435 | | Most Online2,386 Nov 19th, 2025 | | |
This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
| | | |
| |