OP  Platinum Member (300+ posts)
Joined: Jun 2013 Posts: 346 Likes: 3 | Thank you all so much for the support!
Forgive my language, but it totally sucks to be incapable of travel. So many foljs want me to travel to get other options, and I Just Can't. It is hard to tell dear friends and family to just back off!
On the blessing side, a man at my church sees one of my ENT's partners, and he has done well through multiple recurrences. It helps me hold my ground on that choice. And my psychiatrist's nurse is trying to get me a liquid form of Lexapro. Once my meds get back in shape, that will help sone. My anxiety issues cause severe nausea and lack of appetite, and I get the impression that would synergize badly with my efforts to survive rads.
This forum is literally and figuratively a life saver. Thank you!
Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
| 
