Well, I seem to be healing okay. That is the good part. (Hurts like crazy but it is within normal.)

The path report shows reasonably clear margins. We got the tumor we were going for. But there was a micro tumor in another section. Apparently I am just full of micro tumors waiting to sneak up and grow. So, my surgeon says we are done with surgery, because continuing to take out slices is just not efficient. Oh, and it was SCC, moderate to poorly differentiated.

We see a radiation doctor and another oncologist for options, next week. I have met the radiation guy before, and I am okay with him. Not sure what he will suggest. The other guy. . . I met his partner months ago to talk chemo, and I will not go to him. I am hoping his partner will be better.

So. . . very scared right now. All those bullets I dodged this summer are coming for me now. I can barely handle surgery recovery. Granted, this is my third surgery this year, but still.

Just wanted to update. I don't even know what questions to ask. Iasked them all this summer. I just want to run away and hide.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery