 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so relieved to hear you will not do your own peg procedures!
Go see the gastro doc if you are experiencing changes with the tube. Maybe there is something wrong???
As you are experiencing, recovery is not a quick and easy process. It is full of ups and downs and many setbacks which can be frustrating and annoying. Recovery cant be rushed, it will take weeks before you begin to feel better and several months until you begin to return to your former lifestyle. If you focus on what is controllable (your intake) you will do better with recovery. Every single day take in a minimum of 2500 calories and 48+ oz of water and you will soon begin to notice small improvements. The first 2 or 3 weeks post rads are the hardest time of the entire process. Radiation is still actively working just like if you were going to treatments.
Hang in there, things will be easier soon.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
