 Senior Member (100+ posts)
Joined: Aug 2013 Posts: 144 | Sorry to hear about your polyneuropathy problems. As Paul has mentioned Neuropathy is varied, mine is due to Protease Inhibitors (namely Reyataz/atazanavir). I mention this because I seem to remember some time ago about a treatment for neuropathy associated with HIV+. I couldn't take it for reasons I cannot recall at the moment. Perhaps a little investigation may shed some light. I do not think that it worked like lyrica or gabapentin. Just a shot in the dark. Perhaps it may have an active ingredient that may help you.( Long shot) And Hello Ed and Paul
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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