David, I had significant neuropathy problems. Numbness in big areas of the body until I had almost no feeling in half my torso and most of my lower body along with many months of tingling in the hands, feet, legs, face, neck.

I had lots of blood work and found almost no B-1 which can cause permanent nerve damage. I also used a blend of Chinese/Chiropractor. I call them neurological chiropractors and the technique they use is similar to acupressure only directed to specific nerve and muscle problems. I am still amazed they can isolate and eliminate almost any pain I have had this year. The technique is called Active Release Technique. You can google it and there is a find provider link.

Anyone with a lot of radiation can experience very random things that are often misdiagnosed primarily because no real studies have been done because of the random nature of late effects of radiation. I have had them chase my pituitary, thalamus, thyroid and even my testicles trying to chase hormone loop imbalances. If the nerve damage doesn't get you, the vascular restrictions and associated problems will.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023