He does have a portable suction unit but says that doens't help him as most of the mucous he has to cough up, and then when he gets to coughing that's when he gags and throws up. He's on a fentanyl patch and taking oxy round the clock every 6 hours. So I know his pain is controlled. I tried suggesting he drink something other than water and he tells me it tastes bad. Which I get that's unpleasant but I wish he would just do it!! He has a PEG and gets all of his nutrition through that, but I would like to see him start to use that less and his mouth more. I know that may be asking a lot, but I'm afraid he will never get off that tube because all he will drink is water. My mom tried to give him soup to sip on and he just maked an awful face at her and set it back on the counter. Did anyone else begin to sip on things a week post treatment? This has all been so frusturating. Just when you get a mental high for completing treatment, you get brought back down by all the side effects. I'm just hoping this doesn't last long. Any other advice is much appreciated!!!


Caregiver to my Dad
BOT Stage IV SCC, HPV+
Dx on 9/9/13
Cisplatinx3- 1st dose 10/1/13
PEG in 10/20/13
PEG out 12/24/13
Rads x 35- finished 11/15/13
Never a smoker,drinker.