 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jennifer,
Welcome to the neighborhood. I would like to tell you to sit back and enjoy the ride but I would rather tell you to read all you can about diagnosis and treatment right now so you can be better prepared to ask the questions you need answered in developing a sound treatment plan to give you every possible chance at beating this horrible disease the first time around. I am certainly hoping for the best possible medical team to be provided for you. You may have some rough road ahead of you but as you read from more and more you will see it is a well travled road! Give those kiddos a great big hug from me.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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