[quote=emilyp]I had a horrible taste in my mouth too around 4 weeks in - it was not the metallic taste I had anticipated; however, it was more of a sour taste. It drove me absolutely insane - maybe one of my worst side effects. There wasn't much that seemed to help me... I did start sucking on some milder mints though that didn't irritate my mouth. I can't remember the brand I used, but I would give it a try if i were you. [/quote]

Ridge and Emily,

Here's some observations in no particular order;

My dentist clued me in to the use of Xylitol (a non-sucrose based sugar) in dealing with Dry Mouth. She sells Theramints at cost, and they are effective as long as they are in your mouth. Which is to say, since they melt away quickly, not long.

Icebreakers brand mints are also good for this, their "Frost" mints are the longest lasting I've found.

But the most effective thing I've found is Chewing gum sweetened with Xylitol. I buy three-paks of Trident Tropical Twist and love it. One piece can be chewed for more than 4 hours without loosing it's effectiveness. Biotene gum, which the medico's like to suggest, simply cannot compare!

As for the taste, I suggest you try coffee with a packet of Swiss Miss cocoa and a single packet of Splenda. I started this because I could actually taste the chocolate and the sweetness at a time when I had lost nearly all my sense of taste. My sense of taste is about 60% these days, but I still make a couple of cups of the "Mocha-Java" mix daily.

Good luck, and remember that this will all pass, so don't get hung up on how bad it might be at any moment in time.

Hang in, it's going to be just a memory before long.


My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!