Well, I had a feeding tube and only ate orally so I wouldn't lose the ability to eat. I was only able to eat vegetables, like dry salad, cucumbers, tomatoes and celery, also angel hair pasta with butter for weeks. Not sure if you have tried those foods yet. Drinking water was the absolute worst! By someone's suggestion here on the forum I switched to Fiji water with ice cubes made with the Fiji water and was able to handle that. Also by suggestion here I used a water pic with the spoon attachment, which got rid of some of that mucous and refreshed my mouth for awhile. However, none of that changed the taste of food. I think it's just the taste buds and mucous messing with your taste. Hope you can find some kind of food that works for you.
Nancy (53 at dx) Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs 7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo. 5/29/13 - Found primary 7/3/13 - TORS 7/8/13 - Emergency Surgery/Blood vessel burst in throat 8/9/13 - Peg in 9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck 10/14/13 - Radiation ended! 11/12/13 - PEG out!
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