Very glad to hear from you. For the last 21 days I have been experiencing incremental but daily improvements. Dry mouth has fallen like yours to 1 to none times at night. I do keep water close by though. Also breath Rite strips help. I have gained 10 lbs back and give Christine credit for that. For weeks I do a shot s or she recommended. 2cups whole milk instant breakfast envelope, whey protein powder, 2 tablespoons peanut butter, same of chocolate syrup, then 2 cups or more of rich chocolate ice cream. Blended and 2000 calories. I take that every night to guarantee calories. My energy level is incredible compared to a few weeks ago and 10 hour days still leave me with energy at home. Tongue has healed still thin on tissue though. Still very careful of what I eat but I do get 1500 to 2000 calories. Hair is growing again on my neck. Only battle is with my throat from time to time. Soreness but tolerable. You will experience same so keep pressing forward.

Jim




Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.