Christine,
Thank you for your response. I have been on Neurontin for 6 months along with Lyrica which are both suppose to help with nerve pain. My ENT put me on this in the very beginning.

My pain is localized to the back of my tongue. My ear and back molar hurts as well. This is constant pain and agonizing.

I have healed perfectly from my surgery according to the doctor. The pain is the exact pain I was having before. It's crazy. Now, I don't have that poke feeling any longer from the hyoid bone tip so that is a positive.

My worries are truly that I have tongue cancer with my symptoms and light up on the PET scan. The doctor hasn't biopsied the main area I am hurting. I thought he would have got that area with the lingual tonsillectomy, but he got just below it.

My medical history is simple. I have had every blood work up possible, Endoscope, MRI, CT Scan, and Pet Scan along with Tonsillectomy, Lingual Tonsillectomy, and 9 lymph nodes taken while removing hyoid bone tip. All negative.

I have another checkup with my ENT in a week and I will discuss all of my problems and test as well. I am very thorough. I have questioned him on everything and usually stay in his office for an hour. I have all my medical records as well.

My tongue just hurts so bad, and it can't be just nothing. We all know that this cancer can be hidden and missed. I've seen people with same testing missed over and over......sad but true!

Thanks for all the help. Any other info would be appreciated.