As most of you know I have been trying to find out what has caused my terrible tongue pain (constant) for over nine months.

I recently had a hyoid bone tip removed that was poking in the spine which they thought may possibly be causing some of my symptoms, but not the tongue.

I am 3 1/2 weeks out of surgery and the tongue pain is still there. I have had small biopsies on my base of my tongue and lingual tonsil removed which did not cover as much area as I thought. I also as you know had tonsillectomy, MRI, CT scan, and PET scan which did show slight uptake in this area. 4.1 SUV.

My question, is it possible that a area was missed that could be cancer? Is possible to be that small and look completely normal like tongue tissue? I am not very convinced by the MRI, CT, and Pet because I know of so many individuals whose have been missed by these test.

Please any insight would be helpful. I am tired of this pain and there is NO other explanantion. Should I biopsy the two remaining areas that the doctor missed? I don't want to have cancer, but I don't want it to be missed either. I have known and personally talked with people who have had all testing done that I did and even biopsies that were missed. Please help. Does this cancer grow on the surface of the base of tongue or could it be under the regular tongue tissue.

I'm so literally mentally exhausted and this pain is horrendous. My pain started in March with dry mouth, then no taste in back of mouth, then tongue pain and burning started, later ear pain and tooth pain on same side.

Please, no negative comments. I'm worried sick and only need positive people leaving comments. Thank you