Hi CWB, Welcome here, and best of luck with your upcoming treatments!

I noticed you said that you "assumed..."

And I would say, "Don't assume that your medical folks will do anything."

You are going to find out that you need to be your own advocate, and ask for confirmation on any assumptions you find it necessary to make.

Write down any questions you have prior to any meetings to discuss your situation, and don't leave without asking them and getting a clear answer.

I'm not knocking the medicos, all of them that I've dealt with (in technical terms, that would be a "Bunch!") are fine, knowledgable and skilled compassionate folks, genuinely interested in giving you their best efforts.

But they are also busy. Very busy! They have an agenda that they feel will meet your data needs, but they cannot look into your mind and it's up to you to be our best advocate for getting the info you need, and that includes especially scheduling info. It often slips through the cracks, because they are so busy and frequently distracted.


My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!