I am in the middle of the 2 above positions, as I had a bilateral ND based on positive PET results for nodes in both sides. Turns out it was a false positive. I don't think, however, that I could have rested easy without having taken all the steps recommended by the surgeon.

On the other hand, I was given the option of radiation as my nodes came back clear and had clear margins, but the tumor was large and deep. I chose not to do the radiation, but it seemed logical (basically my risk of recurrence would drop from 2 in 5 to one in 5, but would cause a whole lot of damage).

The ND, for me, was mostly physical recovery which I had control over (ie how diligent I was in my PT). I took control, and while it took time, most has been recovered from and I plan on the remainder being beaten into submission by the time I hit the 2 year mark.

There are always risks with any choice, it's a question of which ones, and the consequences one can live with.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt